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Home News Haryana

Haryana Cabinet approves Financial Assistance to individuals Suffering from Rare Diseases

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January 3, 2024
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IEP Chandigarh

Haryana Cabinet met under the Chairmanship of Chief Minister, Sh. Manohar Lal, has approved a pioneering scheme offering monthly financial assistance to persons suffering from rare diseases.

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The scheme, “Financial Assistance to Persons Suffering from Rare Diseases,” comes as a response to the increasing prevalence of rare diseases affecting families and communities across Haryana. The National Policy for Rare Diseases 2021 identifies 55 rare diseases, causing undue financial strain and societal impact. With an estimated 1000 patients currently suffering from these rare diseases in Haryana, the government aims to alleviate the economic burden faced by affected individuals and their families. This compassionate initiative was announced by Chief Minister on May 11 2023, during the inaugural function at Civil Hospital, Yamuna Nagar.

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Under this scheme, individuals suffering from rare diseases, meeting the eligibility criteria, will receive monthly financial assistance of Rs. 2,750 per month. The financial assistance provided under this scheme will be in addition to the benefit being availed under any other social security pension scheme by the applicant.

Haryana cabinet which met under the Chairmanship of Chief Minister, Sh. Manohar Lal here today accorded approval to a proposal regarding the deletion of 7 castes namely Aheria, Aheri, Heri, Hari, Turi or Thori from Sr. no. 1, amendment of the word Jangam-Jogi as Jangam at Sr. No. 31 and omission of Rai Sikh caste from Sr. 50 in the State list of Backward Classes (Block-A), in the schedule of the Haryana Backward Classes (Reservation in Services and Admission in educational Institutions) Act, 2016.

The representations has been received from individuals and associations/organizations time and again requesting deletion of Aheria, Aheri, Heri, Hari, Thori or Turi and Rai Sikh communities from State list of Backward Classes (Block-A) as these caste have been included in the list of Scheduled Castes of Haryana by the Central Government.

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The Central Government has also deleted these castes from the list of OBCs of Haryana as list of scheduled castes and other backward classes are mutually exclusive and one community cannot be found in the list of Scheduled Castes as well as Backward Classes at the same point of time.

To clear the confusion being faced by the authorities concerned whether to issue SC certificate or BC certificate to these castes and once these caste have been included in the Constitution Schedule Castes order, same are liable to be deleted from the list of Backward Classes.

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After deleting Aheria, Aheri, Heri, Hari, Thori or Turi from the list of Backward Classes (Block-A) from Sr. no. 1, Naik caste will remain at Sr. no. 1 and while deleting Rai Sikh from Sr. no. 50, word ‘omitted’ will be inserted at Sr. no. 50 with effect from June 30, 2016 as the Government of India has also deleted these castes from the OBC list of Haryana from the same date.

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Further, at Sr. No. 31 of the BC Block (A) list, Jogi Jangam will be amended at Jangam while other existing enteries will remain as such.

Haryana Cabinet which met under the Chairmanship of Chief Minister, Sh. Manohar Lal here today accorded approval to a proposal regarding the grant of one-time cash award for PVSM to Air Marshal Manavendra Singh, PVSM, AVSM, VrC, VSM, ADC as a special case by the Government of Haryana.

The Veteran Officer, Air Marshal Manavendra Singh, PVSM, AVSM, VrC, VSM, ADC has been awarded PVSM by the President of India.  The address of the Veteran Officer at the time of joining the services on December 29  1982 was Ludhiana (Punjab). The address of the Veteran Officer at the time of the award received on January 26, 2022, is Sector-2, Panchkula since 1988. Therefore, the Cabinet by giving relaxation in policy No. 28/2/2005-4D-III dated May 28, 2014, has decided to release a grant amount of Rs. 6,50,000 to the Veteran Air Marshal Manavendra Singh.

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